Monday, June 19, 2023

June Updates

 I can't believe we are already in the month of June, and already one year into my stage IV cancer diagnosis. It's been a very busy time for us lately. We've wrapped up school-year activities (including an overnight stay at Moody Gardens Aquarium for Science and an overnight stay in San Antonio to see the Alamo and other fun sites for our history co-op), the kids had their spring piano recitals, Abbey had a surgery to remove two rods from her right arm, Abbey was "Dorothy" in the play "Dorothy in Wonderland" and performed in a musical at church, Luke finished up a spring basketball season, we celebrated my Mother-In-Law's birthday in the Houston area, we all finished up VBS at church, Luke went to CG Victory camp and then off to Church youth camp for a week, while Abbey attended a day camp here locally and Drew went to California. Last year at this time, it was during VBS at church, our wedding anniversary and CG Victory that I was going through testing and found out my cancer was Stage IV. So, going through these activities again this year definitely stirred up some painful memories. But, I am also celebrating a year of good health. I know that sounds strange considering my diagnosis, but I really do feel very well. And, I know back when I was first diagnosed with stage 3c breast cancer in 2012, many of my friends who had similar diagnoses as me moved to stage IV and then their health declined very quickly (several of them passing just after a year or so). My heart was broken for these young women and their young families, and I definitely do not take for granted my health for these past 11 years!! Before I jump into my PET scan results, here are just a few snapshots of the past month or so...

Abbey starred as "Dorothy" in "Dorothy in Wonderland"

Piano recital


Abbey helped lead worship at VBS

Luke and his buddies that helped with recreation for kids at VBS

Luke demonstrating the obstacle course for the kids at VBS

Abbey participating at VBS with her group

more VBS

Drew, taking a picture of me, taking pictures at VBS. We were part of the media team.

Luke at CG Victory

Celebrating Mimi's birthday--sock hop style

searching for crabs at our overnight in Galveston for science group

Abbey and I played at the museum of Illusions one night while Drew and Luke were gone last week.


I spent our 15th wedding anniversary getting a PET scan, while Drew was in California. Not the best way to spend the day, but honestly, we aren't big on celebrating specific dates. Any day we get to spend together is a great day and I am so thankful to be married to my best friend. I am praying for many, many years to come!!

This morning, I had a follow up with my oncologist, who revealed the results of my PET scan to Drew and me. My PET scan showed increased uptake in my bones (Left L2 vertebra, left L4 (this one showed an increase in SUV max from 2.7 previously to 9.1 now,) superior left acetabulum (hip) and mid sacrum.) I didn't see any mention of ribs, which WERE mentioned a year ago, so that's good. 

I also had an increase in uptake in my lymph nodes (4 of them showed uptake, whereas I believe there were more in my PET scan a year ago) and my liver showed two areas increase slightly in uptake and one decrease. 

The oncologist's opinion was considering it has been a year, it is fairly stable (aside from my l4 vertebrae) but heading in the wrong direction. So, she wants to switch some things up and I will research those things over the next couple of weeks while we are awaiting insurance approval. (She wants to switch from the aromatase inhibitor I have been on to a different estrogen receptor antagonist, Fulvestrant, and a different targeted therapy, the CDK4/6 inhibitor Kisqali.) In the meantime, I have been doing testing with a functional medicine doctor and I am hoping to find those results out within a couple of weeks. I am trying to figure out what is going on with my immune system. 

What is crazy is I feel great! I would never know I had cancer had I not gotten these PET scans. I know probably diet and exercise help me feel so well and have so much energy to Go, Go, Go! The only thing I have noticed is a little more back pain (I always have back pain, it's just gotten a little worse. But, I think I am fairly immune to the back pain since I have had it for so many years due to my scoliosis.)

Anyway, we would love your continued prayers! I know with stage IV cancer, things can change for the worst in an instant. But, I keep telling myself, "I am healthy, I am healing, I am well!!" Thank you Jesus! This is how, specifically, we would love prayers.

  • That we can figure out how to get my body in tip-top shape so it can fight the cancer itself (with specific natural healing modalities, supplements, foods, etc. This is why I am getting testing with a functional medicine doctor.)
  • That we can make the right decision in whether to increase high dose Vitamin C infusions, keep it the same or drop it. It is so hard to know if they are helping. If I stop them, and see an increase in my cancer, perhaps they work? But, that is risky. Perhaps they are keeping me somewhat stable? I need wisdom here, because they are EXPENSIVE!
  • That my cancer just goes away! I do believe in miraculous healing. 

Thank you for reading!

Tuesday, March 21, 2023

March 2023 Life and Cancer Updates

Life in 2023 has been a bit hectic thus far, but it is all looking up from here!   We've had lots of basketball tournaments (a few out of town). At the end of January, my cancer markers were looking great and my circulating tumor DNA number (Signatera test) had dropped significantly (at the end of October it was 1.59, and at the end of January, it was .69). Then, many stressful events occurred. At our district basketball tournament in Mansfield, TX at the end of January, Abbey was swung to the floor at a basketball game by an opposing team player and rushed to the hospital with a compound fracture. Both her radius and ulna were broken in her right arm and one of the bones came right through her skin. It was rough and she underwent surgery where two rods were placed in those bones to hold them together. I felt so badly for my sweet girl. I hadn't gotten any sleep in the hotel the previous night, and now, I lost another night of sleep caring for our sweet girl on (making sure she didn't roll onto her right arm while sleeping).


We got back early on Sunday morning, and I managed to get a little sleep Sunday night and Monday night. Then, my dad came to visit on Tuesday. We had been looking forward to his visit, but only got a little time of fun with him until Tuesday night, when a terrible ice storm came to our town and we lost power (cue more nights of no sleep).  We lost power for days and had a lot of destruction at our home. We lost trees, massive tree limbs on our gorgeous live oak trees and several massive limbs even fell on our home in five places, damaging the roof and gutters. We also had limbs fall on other things all around our house, causing a lot of destruction. Our friends and neighbors were so kind to offer us a place to stay with them since they had warmth and power (this was especially important since my dad was there visiting). I say all of this only to explain the battle I have had with the lack of sleep and stress lately. With all that, some of my healing modalities couldn't happen. So, needless to say, I was not surprised at my next blood draw to see how my tumor markers came flying back up (not good). You may recall that in December, my PET scan showed remarkable improvement. In fact, many of the cancer tumors were completely gone and the ones that remained were greatly reduced. Things were headed in the right direction. Since things were improving, I decided to test some changes I had made previously to see if they were necessary. With Christmas, I added occasional sweet treats. In addition, I added more occasional meat to my diet. Honestly, every time I did though, I regretted it, as I didn't feel well after. I have learned that meat doesn't make me feel well. Everyone is different, but it is better for me to have very high quality fish or chicken occasionally only. Red meat in general is no good for me. The other problem with meat, is that when I do, I eat less vegetables (nutrient dense foods that my body craves). I also had higher glycemic index foods on occasion. 
 
We tried to take care of the massive amounts limbs that fell around our house and property ourselves, but they were just too numerous. We finally caved and, after getting the most reasonable quote we had seen, paid a company to help us clear all the limbs. Although our front yard looks so much different (not in a good way, due to losing a huge canopy of live oaks that we previously had), having all the branches cleared to where we could actually see our home lifted a very heavy burden. 






Anyway, fast forward to Monday, March 13, where I had my 3 month follow up PET scan. I was at peace during the scan due to all the prayers going up on my behalf. I received the results on Thursday by phone, along with the request that my oncologist wanted to meet with me the following day. Anytime your oncologist wants to meet with you as soon as they receive your scan results, it is not because they are good results. My results showed progression of the cancer in my bones and lymph nodes (from the previous scan), but my liver tumors are stable. It definitely wasn't the response I was hoping for, but with the stress and lack of sleep I had over the past couple of months, I definitely wasn't surprised. I experienced changes in eating, my healing modalities and exercise, sleep and stress and I am hoping that by going back to the strict lifestyle I had during the first 6 months of treatment, and with prayers, my cancer will go away. I am also working hard on making sure I deal with stress the right way. Stress kills, y'all. I think my labwork clearly shows how important sleep and stress reduction is.



After speaking to my doctor about other treatment options she was considering, we agreed to stick to the current course for another month and see what happens to my circulating tumor DNA. At my last ctDNA test at the end of February, we noticed it was back up to 1.47, from .69 (it was 1.59 at the end of October). 
 

 
Typically, you will see changes in that prior to seeing changes in diagnostic testing. Considering the PET scan seemed to line up with this increase in ctDNA (my Signatera test results), it seems like a pretty good indicator to my treatment response. A blood draw is much easier than a PET scan. So, I will get weekly blood draws (my ctDNA every two weeks) and in a month, I will meet with my oncologist to see if things are working and what our continued plan is. I will schedule another PET scan in 3 months, in June (which will be one year from my initial scan.)
 
So my plan is to go hard core on all my healing modalities, diet, exercise, stress reduction, prayer and meditation, deep breathing and more! I would love your prayers---prayers that God leads me to what I can physically do to help heal this cancer and bring my body to a low inflammation and healing state permanently.  I want this cancer gone--and gone for good! I would love for your prayers of complete healing of my body so that I may enjoy many, many years with my family.  Thanks for your continued prayers!

Thursday, December 15, 2022

December Updates, including PET Scan results

Italy, Holidays and a Pet Scan, oh my!! It's been so long since my last post, because life has been extremely busy in our house. First, we had an amazing adventure in Italy at the beginning of October, traveling to Rome, Florence, Cinque Terre, Milan and Venice. The kids studied all about ancient Rome, Michelangelo, Leonardo and more before our trip.  It was a pretty awesome field trip, seeing in person all of the things, the remnants of history and art we had learned about.


When we returned, life seemed to speed up even more as we squeezed in all our regular activities, like basketball practice, field trips, history co-op and science group, as well as piano lessons, theater and choir.  Then, we had Halloween and all the fun fall activities that surround that.








 

And since then we've traveled to Oklahoma, played lots of basketball, Abbey performed in two plays and began the Christmas season and all the fun that's involved with that.










Abbey broke her wrist last week, so she will miss playing basketball for 4 weeks.  But, Luke had a tournament this weekend and they were named champions of their division.


This week has included tons of fun also, but there are way too many photos to post.  Maybe I will do a Christmas season post in January.  One exciting thing that happened on Monday is that I had a PET scan.  This is my first PET scan since June.  In June, is when I found out my cancer had spread to my bones, liver, lymph nodes all over my body and right chest pleural area.We've only been monitoring progress via the markers (CA 15-3 and CA 27-29), which are checked at my bloodwork appointments every two weeks.  My markers have gone down slightly, but my oncologist would say they indicate my cancer is fairly stable.  This is a good thing.  But, she says at any point, in her experience, cancer can spread rapidly, so we need a good way to monitor.  There is no way really of knowing whether the markers are indicating cancer shrinking, stability or spreading unless we line the up with something else---like PET scan results.  So, my oncologist (and of course I) were really looking forward to these PET scan results this week. Here is the impression from my June PET scan:

 

I am praising the Lord because the cancer is going away!! Check out my PET scan results from Monday.




Thanks to all the prayer warriors out there! To God be the Glory! On Monday, all day and during my PET scan I had absolutely no fear at all, and felt completely at peace.  I attribute that to the Holy Spirit and all the people who knew about my scan and were praying for me. 

How am I feeling though? I actually am feeling wonderful. The only complaints I have right now are lower lumbar pain and sacrum pain, which surprisingly has gotten worse.  I say surprisingly, because apparently that cancer is smaller than when I had a scan in June.  I pray that it will continue to shrink and go away completely!

I pray everyone has a wonderful Christmas season celebrating Jesus birth with their friends and family.